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I have an "interesting case" the doctors say. I have had many test from local doctors in Seaford,Delaware .... Neurologist in Millsboro, lots of testing at Johns Hopkins in Baltimore..This is the second specialist from Atlanta, But he is working with my doctor in Baltimore at the University of Maryland. Dr Greene the from Genetics at University of Maryland recommended I have some specialty testing by the doctor in Atlanta.Including fresh muscle biopsy and lumbar puncture. The doctors at University of Maryland are very good. But the doctor in Atlanta is very specialized and leader in reasearch of Mitochondrial disorders. Dr. Shoffner in Atlanta wants to discuss results in person. Money is streched before even thinking about traveling to see this doctor..
In September I had a problem with my eye sight ...at first I was legally blind...I can see more now but am not allowed to drive..I am still fighting SSDI and can not work. Hoping this can get a definitive diagnosis,that can help withh SSDI case.
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