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Ease Kaitlyn's daily struggle with Cerebral Palsy
$5,600 raised
28% of $20k goal
52 contributors
41 Weeks running
Following severe neonatal jaundice, resulting in seizures in the 1st few weeks of her life, Kaitlyn now faces the daily challenge of living with Cerebral Palsy.
Living in Ghana, West Africa, where resources & supports are limited, daily care is difficult

My husband and I (living in Australia) are raising funds for our niece, Kaitlyn, who is 4 years old and living with Cerebral Palsy in Ghana, West Africa.

Kaitlyn experienced severe neonatal jaundice, which left untreated due to poor postnatal follow up (normal in Ghana), led to seizures causing damage to her brain. This has led to severe Cerebral Palsy limiting her ability to have neck control, sit unaided, turn herself, feed herself and control over her toileting.

Kaitlyn can't talk, sit or walk, or do the things other 4 year olds can do, but she can smile at the people and things she knows, and tries with her all in her weekly physio classes.

Sadly in Ghana supports for people suffering with Cerebral Palsy and their families are next to nothing, often relying on overseas volunteers who come and go offering physio support or advice. This has made it very difficult for Kaitlyn to have early intervention and makes improvement slow and difficult. Without ongoing physio Kaitlyn's muscles can become stiff and immobile. Without daily medication Kaitlyn also suffers seizures caused by epilepsy, secondary to the brain damage. It's quite possible Kaitlyn's intelligence is normal but with her poor muscle coordination and inability to talk she is stuck inside a body that doesn't do what she wants it to.

Due to her ongoing needs Kaitlyn's expenses mount up. On top of the daily expenses, Kaitlyn's lack of access to supports means she is lacking equipment needed for ongoing care that is easily accessible to those with CP in western countries. 

With money raised from your generous donations Kaitlyn's life could take a dramatic turn.

We are aiming high, goals including:

  1. $2,000 AUD raised
    Cover ongoing weekly expenses for a year; including diapers, weekly physio class & transport (since class is far from home), and medications for the epilepsy and muscle stiffness. $40 AUD p/wk or $2,000 AUD annually
  2. $8,000 AUD raised 
    Cover the above plus a customised wheelchair for taking Kaitlyn anywhere, at present being carried on her parents back which will otherwise continue as she grows. Plus the shipping of such to Ghana since equipment for such is not readily available there.
  3. $10,000 AUD raised 
    Cover the above plus pressure sore prevention mattress and seat pads, and second skin personalised body splints for muscle support.
  4. $18,000 AUD raised
    Cover the above plus return trip to Australia with medical visa for Kaitlyn and her mum, Patricia (our sister), to come for a full physical assessment by the Cerebral Palsy centre here. This would aid in personal fitting of all equipment and allow professional advice on an ongoing exercise plan to optimise improvement.
  5. Excess of $18,000 AUD raised
    Every dollar over this goal would aid in ongoing daily expenses past the 1 year mark, and further equipment that may be available such as a standing support frame. 

All of the above would move Kaitlyn towards a more satisfying life and dramatically ease the burden on her family.
But if you can't forgo your coffee and donate today then please consider sharing our story so that others who are able can help us make a change.


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