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Jacquie Davis McCusker hasn't added a story.
Phil McCusker plays guitar.
Phil has ALS and has difficulty walking. So now he's in a wheelchair most of the time.
He needs a wheelchair lift to get off the porch and to the van.
He will need more equipment as time goes on.
- Wheelchair van (we got a great one inexpensively - $6,000),
- wheelchair lift outside house plus installation ($7,000),
- hoyer/hydraulic lift (like a johnny jump-up for big boys) - gets people from a lying or sitting position to a standing position & vice-versa,
- bathtub modified to shower,
- medication: Riluzole is the only known ALS medication and is expensive,
- electric scooter.
Some items carry as-yet-unknown costs.
Medicare and the VA contribute/reimburse only partially.
We have received some things either inexpensively, or by donation, but the future is unknown.
Right now, Fiona McCusker & Jacquie Davis are helping Phil. That's what you do when you love someone.
Will Phil want/need some assistive communication technology?
Will he want/need breathing assistance?
Will he need in-home care?
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