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My brother John and I were always close. As his big sister, I did my best to protect him. When we found out that a rare, inherited cancer ran in our family and he was affected, I did everything I could do help him fight it. I found a research study which would provide the most current treatment options available, and helped him when he traveled to participate in it. He was determined to live to see his children grow up, and I was equally determined to do everything I could to help him with that.
Sadly, he lost his fight with the disease earlier this year, but for the many people we met who suffer from the same disease, the fight continues. John always wanted to help those people as much as he wanted to get help himself, and we talked about forming an organization to make that happen. Even though he's gone, I want to keep that dream alive.
Education and networking will be essential to the success of this effort. I'd like your help in attending a conference focused on this disease, to be held during the first week of November in Syracuse, New York. The money I raise will be used for the modest registration fee for the conference, round-trip airfare from the LA/Santa Barbara area, and for lodging while away. Should I not meet my goal, and thus be unable to attend, any money raised will be used as seed money for the startup costs associated with the formation of a nonprofit focused on John's goals.
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