maid in scotland/cosplayers support MND/ALS
£127 raised
13% of £1k goal
10 contributors
2 Years running

Everyone at Maid in Scotland wants to let you know what we are raising money for and why. So here we have a few words from Maid Suki.

My mother was diagnosed with Motor Neurone Disease in November 2014. Some of you may know Motor Neurone Disease as ALS (what the disease is called in the USA),and you may have raised money for this last year with the Ice Bucket Challange. If you did then I'd like to say thank you.

MND is a muscle wasting illness which can lead to the loss of the use of muscles that control speaking, walking, swallowing and results in paralysis and eventually death. There is no cure; it is terminal.

A few years ago my mother started to lose the muscles in her hands. At first we all thought it was arthritis but tests confimed it wasn't. The problem with diagnosing MND is that there is no way to confirm that is is MND except for ruling out every other possibility until MND is the only one left, so it took a long time for us to get a diagnosis and for us to retrieve the proper help.  Most of that help consists of visits from MND nurses and specialists who can give all of us advice and support.

Of course this illness is awful for my mother, but it is also horrible for my father and myself. I've found myself crying at least a few times a week ever since i found out, feeling like i've already lost my mother even though i know she's still alive and hopefully will be for a while. This is known as Anticipatory Grief and it's completely normal when someone you love is given a terminal diagnosis.

My friends have been an incredible help, none more so than my amazing fellow Maids and Butlers at Maid in Scotland. When they suggested to me that we could all raise money for MND Scotland I couldn't believe how amazing they all were.

The money you donate will go towards grants for families like mine so building work can be done to their house, whether that be to fit stairlifts or to build downstairs bedrooms and bathrooms for when the family member with MND can no longer make it up stairs. It will go towards councilling sessions for everyone involved, and of course it will go to breakthrough research to one day find a cure for this disease.

Thank you to every single one of you who has been able to donate money or come to one of our events, and even if you cant donate then please share this so we can raise as much money as possible. Motor Neurone Disease is still fairly unheard of and although the Ice Bucket Challange did shine the spotlight on it last year, the charities still don't have a lot of money, so anything you can donate will make a hugh difference. Thank you so much

~Maid Suki

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