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Torie N Tim Estep hasn't added a story.
Arianna Estep is our beautiful little girl who was diagnosed with migrating epilepsy of infancy! At 7 mths old she started having seizures and lost all of her development and capabilites. Her doctors had only given her a year to live and she will be 5 next month. God had very different plans for my daughter. She cant do many things a healthy child can, but boy can she smile. That smile is the one thing that can turn a bad day of mine around. She can turn her head but not hold it. She can move her arms and legs to a minimum and she is now really starting to grasp objects. Her facial expressions let us know how she is feeling. Arianna will nod her head and makes some vowels sounds to communicate with us. She does really well at therapy. We take her to physical therapy, occupational therapy, and speech therapy at our local hospital. We are also considering enrolling her in school next year, only for a few hours a day, with my company, :) .
I have done really well lifting her in and out of the carseat and into her kid cart and stroller, up until recently. Arianna is growing so fast and it's starting to get harder to transport her. I have looked online and talked to social workers and cant find any programs that could help with the purchase of a wheelchair accessible van. However, I did find an organization called Ride To Give that are willing to put Arianna's story on their webpage. They emailed asking for her fundraiser page and support page, so here we are. If u can help us at all it would be greatly appreciated. The cost of a wheelchair accessible van isn't something we can come up with easily, maybe we can do it together. If you cant afford to donate, please share our link! Thank you all and God bless
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