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Amanda Butler hasn't added a story.
Most of you know by now that me and my two children are affected by mitochondrial disease . We are trying very hard to get Katy into the children's institute but are having a bit of a struggle because ins wants her to have a certain amount of outpatient therapy first. They are trying their best to work around this. If it goes through it will be a very last min thing. I still cannot drive due to no license and having a stroke . I will have to set money asside to catch a bus, for food and things I will need to bring her weekly. Also as if there wasn't enough stress and worry my health is serious deteriorating and I have to get IV meds every 4 hrs in my IV around the clock. I now have to go see a surgeon to go talk about a port or a broviac which I did not want to! The worry and day to day stress is unbelievable of may not being able to find a home but we look 247. Please if you can at least please help by lifting some of our financial burden. Thanks And God Bless
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