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Pseudoxanthoma elasticum, PXE, is an inherited disorder that causes select elastic tissue in the body to become mineralised, that is, calcium and other minerals are deposited in the tissue. This can result in changes in the skin, eyes, cardiovascular system and gastrointestinal system. PXE was recognised over a hundred years ago. It affects approximately 1/25,000 people making it a rare genetic disorder.
Our eldest son was diagnosed with PXE in the summer of 2013 and since then we've been wondering what we can do to help find ways of combatting the various illnesses related to the disease. So, in addition to the dietary and healthy lifestyle that we have to impose on our son, I thought it would only be the right thing to push myself, (and maybe some others), to enter into various physical challenges to help raise awareness and money to help international research into PXE.
In 2016 we ar embarking on our biggest challenge yet, to raise £10,000! We are going to be putting teams of intrepid fundraisers together to embark on a variety of very physical and mental challenges. Throughout the year we'll be running, jumping, climbing, swimming and probable enduring pain in various forms, all to raise mone for PXE International. Please help us by donating whatever you can and help us tame PXE.
You can keep upto date with all our challenges and news on our Facebook page: Al & Jo Fundraising for PXE and here on our new web site.
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2016 PXE International Fundraising Challenge Community
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